One of the things I live with all of my life is being left out because my body couldn't do what "normal" bodies do. It is understandable that kids would do this, I find adults can be no different.
A reflection on living with being disabled during a time when I was being evaluated for a heart transplant and the options were as bad or worse than my current condition.
Here are thoughts I wrote when new things were happening in my body. My doctors didn't know what was wrong with my heart so the future was uncertain. Living in uncertainty day after day, year after year, took its toll on me.
